Little Bedia, who has SMA in Ankara, is waiting to be treated.

Melike, the primary little one of Melek-Muhittin Kaleli couple residing in Ankara, who was born in 2012 and had SMA, lived solely 8 months after the therapy was delayed.

After the couple’s second little one, Zeynep, who was born in 2013, their third little one, Bedia Ferhan, was born this yr.

SMA DETECTED IN BEDIA ALSO

The couple took their daughter to the hospital when she was 2 months previous due to the slowness of her actions. On account of the genetic take a look at, Bedia Ferhan was additionally identified with SMA.

Bedia Ferhan, who began her therapy with medicine paid by the Social Safety Establishment (SGK), wants to have gene remedy utilized to SMA sufferers underneath the age of two in the USA in order to totally regain her well being.

Little Bedia, who has SMA in Ankara, is waiting for therapy VIDEO

WAITING FOR SUPPORT FOR TREATMENT

The household, who wanted $2.4 million for therapy, began a charity marketing campaign on October 22.

Nonetheless, just one p.c of the required cash may be collected in 2 months. The household, who didn’t need to expertise the ache of a second little one, referred to as for help for his or her marketing campaign in tears.

“PEOPLE DON’T WANT TO HEAR HIS SON”

Mom Melek Kaleli said that they misplaced a toddler to SMA earlier than, “He was in a position to stay for 8 months. There was no drugs, there was no therapy, we misplaced him with such desperation. Now he has therapy, this time we’re in monetary desperation. We have now completed our negotiations with the hospital in the USA. We have now no scarcity of paperwork. There is virtually one hundred pc optimistic in the hospital. He says we are able to get outcomes. These have been an awesome hope for us. There are such a lot of folks who have succeeded that they provide us hope. People don’t need to hear the cries of their youngsters. We have heard it earlier than. It will be very troublesome to hear it once more. No one stated, ‘With my 3 liras, 5 Let him not say, ‘What is going to occur with my lira?’ stated.

“His Sister Cries Each Day”

If the daddy is Muhittin Kaleli “My 7-year-old daughter goes to the room daily and says, ‘Is my brother going to die?’ ” used the phrases.