Demir Ali with SMA, who collected the necessary money for his treatment, went to the USA.

The wrestle for lifetime of Demir Ali Bayraktar, the 1.5-year-old son of İbrahim Kubilay and Ezgi Bayraktar couple, residing in Ordu, the place a illness known as Spinal Muscular Atrophy (SMA), which causes muscle loss and weak spot, and is identified in each 6,000 births in Turkey, is identified. progress.

Demir Ali, a affected person with SMA Kind-1, which causes the lack of motor nerve cells in the spinal twine and causes bilateral weak spot in the physique with the involvement of the muscle tissue close to the physique middle, has issue strolling, sitting, consuming and even sleeping.


Demir Ali got here to Istanbul in Ordu by airplane with his household to go to the United States for the therapy to be utilized in the United States.

Having made the necessary procedures for the flight, Demir Ali and his household went to Boston, USA.

Demir Ali from SMA, who collected money for his therapy, went to the USA VIDEO


Ezgi Bayraktar, the mom of 1.5-year-old Demir Ali, who answered the questions of the members of the press earlier than his journey to the USA, “After we began the marketing campaign, we set out as a result of we had been wanting for 210 thousand folks to donate 10 Euros. Since this marketing campaign began, we have now reached all these 210 thousand folks in Ordu and throughout Turkey in 100 days. They felt our ache of their hearts, and we coveted their hearts and we had been in a position to discover a place in these hearts, so we began our marketing campaign in 100 days. We accomplished it in sooner or later. I hope anybody who wants this therapy can attain it. These who make kokorec for Demir Ali, these who promote lemons, these who promote potatoes, and people who share their 1-day revenue, had been very beneficial to us. They supported this marketing campaign with 10 liras of their pocket. The kids offered nice help. This marketing campaign 5 liras ended with 10 liras. I ended doing my very own job and offered on the streets. After we returned dwelling for 100 days, our legs had been shaking from exhaustion. This was not the quantity we might obtain alone. We acquired nice help from the military and all of Turkey. I’m grateful to all of them for therapeutic Demir Ali ” mentioned.

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Bayraktar continued his speech as follows:

“Turkish Airways despatched us off from Ordu like our household and they’ll welcome us in Boston. Nobody got here to see us off due to the curfew, however members of the press and THY made us really feel like we had been with our household. The therapy course of will take 4 months there, and if nothing goes unsuitable inside 10 days, the drug might be taken. “We’re deliberate to be part of the physique, and we are going to strive to substitute the issues we misplaced in the physique by an intense bodily remedy course of. In Ordu, they now say, ‘Fly, go on foot, Demir Ali,’ I hope, if not so quickly, we hope to see him strolling quickly.”

Demir Ali with SMA, who collected money for his treatment, went to the USA #2


If the father is İbrahim Kubilay Bayraktar “We’re very blissful and peaceable, we thank everybody very a lot. I can say this to all folks; they shouldn’t be requested, ‘What’s going to occur with my 5-10 liras?’ “It was 10-20 liras. That is why folks realized what might be accomplished once they come collectively, in the case of Demir Ali. Allow them to proceed to do good not directly. When 20 liras accumulate, there may be a number of money and lives might be saved.” mentioned.

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The pilot of the THY airplane made a significant announcement for Demir Ali, who got here to Istanbul from Ordu to go to the USA.

The pilot, who made an announcement to the passengers earlier than departure from Ordu, “At present we have now a really particular passenger between us. On behalf of my group, myself and Turkish Airways, I want success to Demir Ali in the therapy of SMA illness on this tough course of forward. I want all the happiness in his life to be with him and his household.” mentioned.

Demir Ali with SMA, who collected money for his treatment, went to the USA #3

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