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Kezban, who started treatment in Ankara, does not want to be bedridden.


Kezban Karayagiz, one of many three kids of Menekşe and Ürfani Karayagiz couple in Mamak district of Ankara, utilized to the hospital 10 years in the past with the complaints of tremors and spasms in the palms and toes.

Kezban Karayagiz, who might not be identified in the examinations, turned unable to stroll on his personal regardless of receiving bodily remedy.

On account of the genetic check carried out in 2020, Karayagiz was identified with ‘Sialidosis Sort 1’ and ‘Sort 2’.

A BALOPHENE PUMP WILL BE INSTALLED

Whereas beginning the treatment with the baclofen drug to Karayagiz, it was deliberate to set up a ‘baclofen pump’ to robotically ship the drug into the spinal twine.

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THE COMPANY AND THE HOSPITAL DID NOT AGREE

Nevertheless, because of the disagreement between the corporate and the hospital, the ‘baclofen pump’, which was coated by the Social Safety Establishment (SGK), might not be fitted to Karayagiz.

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“I WANT TO HAVE THE SURGERY BEFORE I BED BED”

Kezban Karayagiz stated that the identify of the illness is ‘Sialidosis’ and that it’s a illness seen because of consanguineous marriages, and that though his mother and father are not kinfolk, each of them are carriers.

Karayagiz, “I did not have any signs of convulsions or tremors. On the age of 15, I had many falls in school, there have been days after I could not maintain the pencil, I attributed it to stress; I exploit this drug orally, it’ll be given to me in liquid type throughout the surgical procedure. The machine will be inserted into the stomach cavity. I want to get higher as quickly as attainable earlier than this illness makes me tied to the mattress and progresses additional, I want to have surgical procedure. As a result of as I become old, I see totally different reactions each month. I’ve many assaults. After I get well, I want to go to college and I want to proceed my life.” stated.

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“I WANT YOU TO HELP”

Kezban Karayagiz famous that state hospitals ought to agree with corporations in order to have surgical procedure, “For this, I first went to İbni Sina Hospital. The primary check section of this surgical procedure was achieved in the hospital to see if the physique offers consent or not. After my check, I walked usually for the primary 2 hours, my palms did not tremble, my toes did not contract. The choice was taken, approval was given. However then my physician got here and so they took me out of the hospital, saying, “As a result of the hospital owes the corporate, the corporate does not provide the instrument, so we won’t do it.” 1 week later, I went to Dışkapı Hospital, my check was achieved in the identical manner and my physique authorised. They made me wait, saying, ‘We’ll attain an settlement with the corporate,’ however once more, for the reason that firm works in {dollars}, the hospital did not obtain tools, I might not have my surgical procedure. I want them to assist me. My palms and toes are now not holding again. My mom takes care of my wants.” he stated.

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