In HaberTürk’s Information Evaluation, offered by Mehmet Akif Ersoy, the state of affairs and remedy length of SMA patients in Turkey have been mentioned.
One in every of the friends of the program, Prof. from Germany Bonn Rheinische Friedrich-Wilhelms College. Dr. Soyhan Bağcı acknowledged that those that marketing campaign for SMA patients do not have a good grasp on the subject and mentioned:
“CAMPAIGN DOES DO NOT DOMINATE THE ISSUE”
“Our artist pals, information channels and households do not have management over the subject. A picture has emerged: There’s a remedy. You apply that gene remedy and every thing ends. There isn’t any such factor. The present remedy, even when finished early, is 1 12 months, for a 6-year-old youngster. We do not know what’s going to occur in 10 years, however there was a nice progress in SMA remedies in the final 20 years. Good outcomes are obtained with the remedy utilized from the waist.
“IF APPLIED THERAPY IS INeffective, THE POSSIBILITY OF GENE THERAPY TO BE EFFECTIVE IS VERY LOW”
I do not discover it proper that they pursue gene remedy for patients who do not reply to the remedy utilized to the waist. As a result of if the remedy utilized from the waist is not efficient, the impact of gene remedy may be very low.
Turkish physician in Germany instructed what’s flawed about SMA disease-Video
“COSTS OF THE TREATMENT ARE COVERED IN TURKEY”
Turkey is one in all the first international locations to simply accept the remedy utilized to the waist. All prices of this remedy are lined by Turkey.
Even in very superior patients, it’s not attainable to out of the blue get better with gene remedy.”
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